Effects of epilepsy on relationships (%)
| Variables | Wave 2 (n) | Mean (SD) | Wave 4 (n) | Mean (SD) | Change (Wave 2 to 4) | Wave 5 (n) | Mean (SD) | Change (Wave 2 to 5) |
|---|---|---|---|---|---|---|---|---|
| Relationship with partner | 37 | 2.64 (3.72) | 23 | 2.90 (3.38) | +0.26% | 21 | 2.54 (3.48) | –0.1% |
| Relationships with friends | 49 | 3.32 (3.48) | 44 | 2.88 (3.56) | –0.44% | 39 | 2.31 (3.43) | –1.01% |
| Relationship with family | 50 | 2.90 (3.48) | 44 | 2.50 (3.38) | –0.40% | 39 | 1.88 (2.74) | –1.02% |
+ refers to increase in effect of epilepsy and – decrease in effect of epilepsy. Items are scored 0–10
CW and CLP: Conceptualization, Investigation, Writing—original draft, Writing—review & editing. Both authors read and approved the submitted version.
The authors declare they have no conflicts of interest.
The ethics clearance was gained by Deakin University Australia (HREC 2013-011).
This is a panel study consisting of the same people from Waves 2 (2010), 4 (2016/7) and 5 (2019/20). Participants are recruited from the Australian Epilepsy Research Register (AERR) which commenced in 2006. Informed consent was gained from participants.
All participants gave their permission for their data to be published.
Data is protected by ethics requirements and is not available, but the authors are willing to answer readers’ reasonable questions.
UCB Pharma provided some of the funding for this project. The funder had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.
© The Author(s) 2024.